gimpypilgrim
Member
- Time of past OR future Camino
- (possibly 2018)
Hi again - I was thinking about this terrible body-wide tendonitis that you have .. and it just doesn't seem right somehow . I mean, there is no external agent, virus etc, that can attack the body like this so it must be some internal imbalance causing it.
I see that you are intelligent and brave and take prescribed medications but, could I ask, have you tried other methods?
There is no real disease that has 'itis' at the end of it - par ex: Bronchitis merely means something wrong with the lungs, same for tendonitis .. just something wrong, not an actual disease, so 'itis' is an admission of no knowledge rather than a description of the problem - so, with this in mind and knowing that your particular 'itis' is caused by inflammation, body wide inflammation - have you tried other things - diet for instance?
We all know that just a small amount of coffee is terrible for arthritis sufferers (another itis) - remove that for a reduction in symptoms, and we all know that some of us can be allergic to certain foods and/or additives, so ...
The reason I ask is that a woman who suffered terrible psoriasis - that awful disease that can not be cured - recently published a book on her 'home cure' and now has thousands who no longer suffer from it. Psoriasis is a body inflammation reaction - what she did was to look at diet and eventually cut out caffeine, alcohol, dairy, and wheat and her psoriasis completely disappeared.
So I am wondering if you have diet tested yourself at all? Have you tried cutting out wheat and dairy from your diet for a fortnight or three weeks to see if there is a difference?
Have you tried going back to a pre-industrial diet where you eat only fresh organic foods with no additives or pesticides? Or tried the ancient hunter diet of just fat meat and vegetables with no dairy or wheat?
If you have not thought of that yet - why not experiment on yourself? Try various diets, for a few weeks or a month each to see if there is a change, if your body comes naturally back into balance? Just remember, if you do try this, that it has to be 100% no cheating on 'just one little bit' of the forbidden.
I am not trying to be glib or patronising, I offer this idea in friendship and support.
Thanks for the suggestion, and I understand where you're coming from.
As things started getting increasingly worse about 4 or 5 years back, I did see a doctor who was into alternative approaches. The first thing he had me do (without adjusting any medication) was an elimination diet, where I cut out all potential 'trigger' foods. I went through a few months of experimentation and thought that I might be sensitive to gluten, because when I added it back to my diet, tended to get mild headaches. I therefore went gluten-free for a couple of years, but eventually stopped it with no ill effect. I am currently largely vegan but I also occasionally have fish or eggs. Unfortunately, none of the diet experimentation reduced the tendinopathy.
Two doctors explained that the "chronic tendinitis" is actually tendinosis - chronic breakdown of the tendons with no inflammation. Every time tendonitis emerges in a new place, it never heals properly and then becomes chronic. My bloodwork never indicates systemic inflammation, either, and even though I take Rx anti-inflammatories it doesn't seem to tamp anything down. Predictably, any novel repetitive motions, or increase in repetitive activity, such as more typing than usual or more walking than usual, will cause acute symptoms that seems to be real 'tendonitis' in that there is temporary inflammation (visible swelling and redness) that will calm down, generally after a few weeks or more and revert to a chronic, less painful state.
I've seen several specialists because the tendinopathy has affected different body parts, and they all have agreed that it is a problem with the tendons. None has been able to say what's causing it, but autoimmune diseases that are known to affect the tendons like this have been suspected but never confirmed. Some have chalked it up to bad luck and others to the aging process. I've come to accept that medicine has its limits -- if you look at it another way, if you lose a foot, a doctor or a change in diet can't regrow it.
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