Time is your biggest ally. There are several, recent medical treatments being tested.
In particular, one in the UK has produced dramatic results in only a few days. For example, have a look at this article from today's New York Post:
Days later, Gath, was walking around the kitchen with ease.
NEVER give up. ALWAYS keep fighting. The Camino will be there when you are ready to return.
Attitude is a large part of how this disease will progress, if it does, how it might be treated, and how that will affect your life.
Your diagnosis is like a gut-punch. But, it is not the absolute, unavoidable, death sentence it once was. Diseases that once meant you had no time left, now mean that you have to deal with some 'speed bumps" on the journey of life.
When you have a down day, or days, pick yourself up, dust yourself off and keep moving forward. FIGHT this thing. You can do it!
Ultreia!