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I was dead, but I won't lie down: I continue walking.

alexwalker

Forever Pilgrim
Time of past OR future Camino
2009-2022: CFx6, CP, VdlPx2, Mozarabe, more later.
A few of the Forum members have known about my condition for some time.

i in Feb. 2024 I was diagnosed with Parkinson's disease. I was registered in the national Parkinson registry. A miserable death was awaiting as my future. No more Caminos. I was filled with depression and suicide thoughts. It was like game over.

I have recently undergone a more detailed study of my body(!) and it turns out it was false: I have a diseise called Polyneurofasi, a nerve fault that inflicts on my legs /walking and some other issues, but not deadly.

As you may or may not know, I have walked many Caminos the last 16 years. As recently as 2014 I walked from Burgos with my daughter (48).

I will now continue to walk Caminos until I fall down for good. Next (May 2015, definitelively) at 71 years of age, with my daughter. I am old, but I am not dead,, and I can definitelely walk. Young people really need to get their eyes off their phones and go see the world, No better place than on a Camino.

However, I was scared stiff after getting the (wrong) diagnose, and had (wrongly, in hindsight) to cancel my commitment as a hospitalero in Najera this spring. Bc. a wrong decision by the doctors.

Sorry, @Rebekah Scott : Doctor's mistale.

@LTfit : Love you too. My heart is yours for your concerns.
 
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Take your time, Alexwalker. There is no need to hurry to the destination.
You bet. I will walk until I don't. Actually, the events of last year have made me even more determined to walk Caminos until I fall down...... What an exit that would be! Going down doing what you love.

After my "death sentence" many perspectives have changed... Live in the now.
 
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A few of the Forum members have known about my condition for some time.

i in Feb. 2024 I was diagnosed with Parkinson's disease. I was registered in the national Parkinson registry. A miserable death was awaiting as my future. No more Caminos. I was filled with depression and suicide thoughts. It was like game over.

I have recently undergone a more detailed study of my body(!) and it turns out it was false: I have a diseise called Polyneurofasi, a nerve fault that inflicts on my legs /walking and some other issues, but not deadly.

As you may or may not know, I have walked many Caminos the last 16 years. As recently as 2014 I walked from Burgos with my daughter (48).

I will now continue to walk Caminos until I fall down for good. Next (May 2015, definitelively) at 71 years of age, with my daughter. I am old, but I am not dead,, and I can definitelely walk. Young people really need to get their eyes off their phones and go see the world, No better place than on a Camino.

However, I was scared stiff after getting the (wrong) diagnose, and had (wrongly, in hindsight) to cancel my commitment as a hospitalero in Najera this spring. Bc. a wrong decision by the doctors.

Sorry, @Rebekah Scott : Doctor's mistale.

@LTfit : Love you too. My heart is yours for your concerns.
“I will now continue to walk Caminos until I fall down for good.”

@alexwalker, as long as you have friends, known and not yet known, you can keep walking even with a little help if needed.

As Lennon/McCartney said: “I get by with a little help from my friends”. Real friends not Facebook friends.

We’ve never met but I’m happy to hear the updated prognosis. Keep walking 🚶.
 

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